With all that is going on with Mum's care at the moment, I felt that another method for people to keep track of what's happening would be useful. I hope to add updates as often as possible to help you all keep up to date whenever you want to.
(The picture is of Mary visiting newborn grandson 'Joshua' in June 2004)
Here is a brief summary of what has led us to this point:
Sometime during 2005 (I can’t remember exactly when), Mary was diagnosed with NASH "non-alcoholic steatohepatitis", a liver disease which closely resembles alcoholic liver disease but occurs in individuals consuming little or no alcohol.
During Spring 2006 Mary had various complications associated with the Liver problems and after lots of consultations and test she was put forward to be assessed for suitability to have a liver transplant. In early summer she went to Kings College Hospital in London where she spent nearly 2 weeks undergoing tests and was finally accepted onto the transplant waiting list and told that the wait could be 18 months.
Over the next couple of months Mary’s condition seemed to deteriorate quite quickly and as well as having to go into Frenchay Hospital several times for fluid to be drained she also lost her appetite and was suffering from frequent bouts of sickness and diarrhoea. This was all contributing to an overall weakness limiting her mobility and making her feel very unwell.
At the end of September Mary suffered a fall at home due to her weak condition and was taken to Frenchay hospital by ambulance. Over a period of 3 weeks she went up and down, seeming to make some sort of recovery before being knocked back down again. This culminated in the hospital calling myself and my Sister Niki to the hospital at 4.00AM on 16th October where we expected the worst to happen.
At around 7.00AM Mary was moved to Frenchay HDU and we were warned that she may only have a few hours to live. Her Kidneys had stopped functioning and the toxins were gradually poisoning her.
Throughout this day the doctors tried to kick-start the kidneys and although they had a little success for a while, things then went back into decline.
At around 5.00PM we were thrown a bit of a lifeline, we were told that Kings College Hospital had said that if they could stabilise Mary’s condition, then they would accept her into their own Liver ITU to see what could be done.
By sedating Mary and inserting a ventilator, the transfer to London was achieved the following day and Niki and I followed to Kings to see Mum settled in. At this point the sedation meant that we were unable to communicate with Mum in any way.
This almost completes the picture of where we are up to today. Niki and I have visited several times since her admittance to Kings. On Thursday 19th, we were at her bedside when she opened her eyes and we were able to communicate with her via yes no questions to which she was able to nod or shake her head. She was in some discomfort but this was soon rectified with some Morphine being given. She has since been resting and we were with her yesterday (22nd) although she showed no signs of her awareness on this occasion.
The clinical situation at present is that Mary is in a Critical condition, she remains stable and is having organs supported with machinery and drug intervention. There is a fungal infection present in her bloodstream, which needs treating and seems to be the key to getting her in a condition where they could still perform a transplant. She has also picked up a couple of hospital superbugs along the way, namely CDIF and MRSA, but these do not seem to be phasing the doctors and seem to be expected in someone who is in her condition and who has spent so much time in hospital. These conditions are being treated with antibiotics.
Mary is currently being extremely well cared for, she is attached to goodness knows how many tubes and pieces of equipment and has 1 to 1 care 24 hours a day with multiple alarms attached to all her major functions.